Sickle cell disease, a genetic blood disorder affecting red blood cells, has cast a dark shadow over the medical fraternity in Uganda. In less than two years, three promising medical students from Makerere University and a medical intern from Uganda Christian University succumbed to this debilitating disease, leaving a void in the medical community and raising concerns about the gaps in addressing sickle cell disease in the country.
Dr. Steven Mulungi Kasule’s Legacy
On November 23, 2023, the medical community mourned the loss of Dr. Steven Mulungi Kasule, a 27-year-old pioneer graduate of Uganda Christian University School of Medicine. Having graduated with a Bachelor of Science in Medicine and Surgery, Dr. Kasule was also an intern doctor at Mulago National Referral Hospital. His battle with sickle cell disease came to a tragic end at Mengo Hospital, leaving colleagues and mentors in shock. Dr. Kasule’s dedication to his profession and determination to finish what he started were evident, making his passing even more poignant.
Joshua Bagenda’s Humble Journey
On December 14, 2023, another tragedy unfolded as Joshua Bagenda, a third-year student of Medicine and Surgery at Makerere University, succumbed to sickle cell disease at Mulago Hospital. Described as a humble and kind friend by Makerere University College of Health Sciences, Bagenda’s service, sacrifice, and courage were celebrated by his peers and mentors alike.
Edgar William Nsumba’s Promising Career Cut Short
The heartbreak continued on October 28, 2022, with the death of Edgar William Nsumba, a fifth-year student of Medicine and Surgery at Makerere University. Nsumba, remembered as a promising doctor, lost his battle to sickle cell disease just hours after completing his final exam in Medical School. His friends and colleagues highlighted his strength, intelligence, and unwavering commitment to his goals.
Addressing the Silent Epidemic
Sickle cell disease poses a significant challenge in Uganda, affecting not only the general population but also claiming the lives of promising medical professionals. The World Health Organization reports that over 66 percent of the 120 million people affected worldwide by sickle cell disease reside in Africa. In Uganda, approximately 250,000 people live with the disease, and 20,000 babies are born with sickle cell disease annually, with a staggering 50 percent succumbing before the age of five.
Challenges and Urgent Needs
Experts and medical professionals are now urging the government to make screening for sickle cell disease mandatory and promote it as a premarital condition. The prevalence of the disease is exacerbated by gaps in awareness, limited access to testing facilities, and the high cost of medication, especially for those from economically disadvantaged backgrounds. Dr. Bill Adrati, the president of medical interns in Uganda, emphasized the importance of public health awareness campaigns, genetic counseling, and reduced medication costs to control the prevalence of sickle cell disease.
The silent tragedy of sickle cell disease has not only claimed the lives of young doctors but also highlighted the urgent need for comprehensive strategies, awareness, and support systems to combat this genetic blood disorder in Uganda.
